Prader Willi Syndrome Awareness

This Prader Willi Syndrome Awareness training can be delivered onsite for groups of up to 15 learners. The course will enable learners to have a better understanding of the condition and in order to support anyone who have a diagnosis of, or present as if they might have the Syndrome.

It is estimated that one in 12,000 to 15,000 people has Prader Willi Syndrome.  Although it is considered a “rare” disorder, Prader Willi Syndrome is one of the most common conditions seen in genetic clinics and is the most common genetic cause of obesity that has been identified to date.

What is Prader-Willi Syndrome?

Prader Willi Syndrome is a complex genetic disorder affecting appetite, growth, metabolism, cognitive function and behaviour.  It is typically characterised by low muscle tone, short stature (when not treated with growth hormone), incomplete sexual development, cognitive disabilities, behavioural problems, and the hallmark characteristics – chronic feelings of insatiable hunger and a slowed metabolism that can lead to excessive eating and life-threatening obesity.  Those who have PWS need intervention and strict external controls, sometimes including padlocking access to food, to maintain normal weight and to help save their lives.

Course Objectives and Key Benefits

By the end of the course delegates will:-

Have developed a basic knowledge of Prader Willi Syndrome and the facts and myths associated with it.

Know the symptoms associated with the condition.

Develop empathy and understanding of the challenges faced by people with the syndrome and their families.

Develop knowledge and skills in supporting people and families affected by the condition.

Know further routes for information, support, learning and guidance.

Outline of Content

• History and reasons for the condition.
• Connections to other conditions.
• Physiological characteristics – physical and developmental.
• Behavioural characteristics – children and adults.
• Degree of cognitive impairment – Mental Health Issues and Neurological Impairments.
• Prevalence.
• Treatment and management of the condition.
• Prognosis – medical and social.

Course Assessment and Certification

Those students who complete the course will be awarded a certificate of attendance which is valid for 3 years.

This course is often booked with the following courses:

• Mental Health Awareness
• Nutrition Awareness