Huntington’s Disease Awareness Training

This Huntington’s Disease Awareness course is for health and social care workers who support those with the disease. The course gives learners an understanding, covering its causes, the progression of its symptoms, and the emotional, mental, and physical difficulties that people encounter.

In order to provide person-centred care, communicate clearly, and uphold safety and dignity, learners will gain more practical knowledge and understanding. While a basic understanding of neurological conditions is helpful, no prior knowledge is needed.

Course Content

• Introduction to Huntington’s disease and its genetic basis
• Understanding how the disease affects the brain and nervous system
• Common symptoms across physical, cognitive, and mental health domains
• Key differences between adult-onset and juvenile Huntington’s disease
• Stages of disease progression and associated care needs
• The impact on communication, movement, and independence
• Overview of mental health conditions associated with Huntington’s disease
• Nutrition, hydration, and swallowing difficulties (risks and management)
• Safe handling and fall prevention strategies
• Therapies and interventions: occupational therapy, physiotherapy, and speech & language support
• Medical management and common medications used in symptom relief
• Emotional and social impact on individuals and families
• Importance of planning ahead while the person has mental capacity
• Ethical issues around genetic testing and reproductive options
• Supporting quality of life through meaningful engagement and dignity in care
• Case study exploration and interactive knowledge checks

Huntington’s Disease Awareness Training Assessment and Certification

Assessment will be by continuous assessment by the trainer – there is no ‘test’ paper. A certificate will be issued upon successful completion of course.

1. Who is the Huntington’s Disease Awareness course suitable for?

This course is ideal for health and social care professionals who support individuals living with Huntington’s disease. It is particularly relevant for those working in residential care, supported living, or community-based services who wish to enhance their understanding and approach to person-centred care.

2. Do I need any prior knowledge to attend the course?

No prior knowledge is required. While a basic understanding of neurological conditions can be helpful, the Huntington’s Disease Awareness course is designed to be accessible to all levels of experience and provides clear, structured learning throughout.

3. What topics are covered in the Huntington’s Disease Awareness course?
The course covers a wide range of essential areas including:

• The genetic basis and progression of Huntington’s disease
• Symptoms across physical, cognitive, and mental health domains
• Safe handling, nutrition and swallowing risks
• Mental capacity, communication strategies, and meaningful engagement
• Ethical considerations and planning ahead
• Practical interventions, therapies, and case study discussion

4. How will this course benefit my role in care?

You will gain a deeper understanding of the challenges faced by those living with Huntington’s disease and their families. The course equips you with practical tools to enhance communication, support independence, and deliver safe, dignified, and compassionate care tailored to individual needs.